- Thu, Aug 24, 2006 /
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Wow! Did we have a long night/day....
On Tuesday when I got home from work, I went to change Abby and picked her up. While picking her up I noticed her eyes rolled in the back of her head and she got stiff. Right away I immediately thought "it''s a seizure". I have seen them before in adults and it looked very similar. We couldn''t talk to anyone right away at the clinic, so we called 911 as Abby was frantically crying (newborn cry) and we could not console her. The paramedics came and did there little (and I mean little) assessment and didn''t see anything out of the ordinary. We got a hold of someone at the clinic and they suggested to go to the ER at Children''s in St. Paul. We started talking about the past couple of days and pieced some other oddities together. Saturday we were at my parent''s and in the tub she kind of jerked her body and turned red. I got a little freaked, but she was just fine for the rest of the night. Then on Monday we went to our friends Matt and Krista''s and when we picked her up out of the exersaucer, she kind of rolled her eyes in the back of her head and threw up. So with all of that (and a gut feeling) we went right away to Children''s and were seen within 30 minutes. We had actually brought Abby in due to a high fever when she was 2 weeks old (nothing came of it--bad thermometer on our part)and saw the same dr. as last night.
The doctor looked her over and with our description of what had been going on he thought it might be something to do with her intenstinal tract. They ordered an x-ray to rule that out and as he was talking, Abby had an episode (that we thought was a seizure) and the doctor right away ordered a CAT Scan. We went to the procedures, xray first. Abby did so good, she was so strong and didn''t fuss at all.... The CAT Scan was so scary for all of us.
We got the results of the procedures right away and everything looked good. No abnormalities in the intestines and no blood or masses in the brain.
Just to be safe we were admitted to neurology where Abby would be hooked up to a video EEG machine for 12-24 hours. They were looking for any abnormal brain activity. Especially concerned about a rare condition called infant spasms (which is a very poor prognosis).
We got upstairs...just looking at the faces of other parents made me worry for Abby even more.
They asked questions and we told the story yet again. Abby had 26 probes put on her head for the EEG. She was so tired (by this time it was 10:30) and scared. Mike and I were both very strong through the whole procedure. After everything was hooked up, we were on to the waiting game.
I got up at least 20 times that night..to monitor every move. I am sure this is how it is every night, but we were on "high alert". Abby got up at 2:30 and took a full bottle and then was up at 7:00am her regular happy self.
The doctor came in around 8:00am and was able to see right on the EEG when we thought Abby was having and episode and said that was not seizure activity or spasms. He was going to look in depth at the rest of the EEG patterns (sleep and awake) for more of a prognosis. The infant spasms if she were to have them would show up several times on the EEG. The doctor finally was able to talk to us by 12:00 or so. He started out by asking if Abby had reflux problems. We said yes, early on Abby would not want to take a bottle and arched her back. She was on Zantac, but we ran out of the prescription a couple of weeks ago and she seemed to be fine. We introduced rice cereal a week ago and then things started to come together.
So....the end result is that Abby did not have any signs of seizure or spasm activity on her EEG which they would have been able to detect in a 12-24 hour period and the "episodes" that the doctor saw was reflux activity. We got another prescription for Zantac which we should give again and in a couple of weeks if we don''t see improvement, they may have to do some procedures to make sure that her insides are okay.
I don''t care if I lose my job tomorrow or if I put on 100 pounds....I have a healthy, strong and happy little girl and that is all that matters. THANK YOU GOD!! and my grandpa Clyde of course for being our guardian angel during this very scary time.